Nouveau programme de soutien pour les jeunes affectés de l’ETCAF qui se trouvent dans le système juridique disponible dès maintenant

Nous sommes ravis de présenter un nouveau programme de soutien pour les jeunes affectés de l’ETCAF qui se trouvent dans le système juridique à Hamilton et dans les régions avoisinantes, qui a été financé par le ministère de la Justice du Canada.

ALL 4 ONE est un programme qui offre une intervention et un soutien aux jeunes (âgés de 12 à 17 ans) impliqués dans la justice et à leurs aidants naturels, vivant avec l’ETCAF ou qui demandent un diagnostic. Ce programme est centré sur le client et dirigé, avec un accent sur les forces et les capacités de l’individu.

ALL 4 ONE comprend que pour les jeunes touchés par l’ETCAF qui sont impliqués dans la justice, la gestion de cas individualisée et le soutien à la famille sont des éléments essentiels pour prévenir la récidive. À son tour, ALL 4 ONE s’engage à bâtir une communauté de pratique parmi les professionnels de la justice concernant les problèmes et les préoccupations des jeunes touchés par l’ETCAF engagés dans le système de justice pour obtenir les meilleurs résultats.

Conscient des défis uniques et permanents auxquels ces personnes sont confrontées, ALL 4 ONE est composé d’un intervenant en soutien à la famille et d’un intervenant auprès des jeunes, qui fourniront une assistance de grande envergure aux jeunes et aux soignants, lorsqu’ils naviguent dans le système judiciaire et accèdent aux ressources communautaires et élargir leurs réseaux de soutien pour développer le cercle de prise en charge du jeune.

Veuillez cliquer ici pour voir la brochure qui fournira plus de détails sur le programme ALL 4 ONE et les différents soutiens qu’il peut offrir aux jeunes et à leurs aidants.

Si vous avez des questions ou souhaitez obtenir des précisions, veuillez communiquer avec la coordonnatrice de programme / intervenante en soutien à la famille, Cassy Bowden, au 289-556-6171 ou par courriel à cbowden@jhshamilton.on.ca ou auprès de l’intervenant auprès des jeunes, Jeff Parker, au 289 -442-5886 ou par courriel à jparker@jhshamilton.on.ca.

(en anglais) Survey of parents with adults and young adults with FASD

Posted on behalf of David Gerry (Host of the Living With FASD Summits)


A stark question from our 28 year old daughter with FASD: What’s going to happen to me when you die

I wanted to connect with you to get your opinion on a situation I experienced in September this year. When asked by the facilitator of a webinar on September 9th (FASD Awareness Day), “What is your greatest fear for the future?” our 28 year old daughter bluntly answered, “What will happen to me when my parents die?”

That simple statement brought to the forefront an ongoing concern that’s been nagging me over the past several years. I assume this concerns many other families, too. As you may be aware, when it comes to solving the long term living requirements our family member with FASD will face (after you pass), there can be many challenges.

In order to find solutions to this issue, I would first like to start by finding out more from parents the scope of the problem, what you have tried and what solutions you have found. I would really appreciate your experience, opinions, and insights so am hoping you are willing to fill out the following 5-10 minute survey here: https://forms.gle/PKnv8eiieMnTwdTf6.

For those of you interested in my findings, I will be offering a free training to highlight the top 3 challenges, leave me your name and email in the last two optional text boxes of the survey.

Thanks in advance for your precious time,

David Gerry

 

(en anglais) Outcomes of Children with FASD in the Child Welfare System

Background

Children living in the child welfare system (i.e. foster care, group homes) are known to experience more adverse outcomes compared to children who live with their biological parents or adoptive/other family members. Individuals with Fetal Alcohol Spectrum Disorder (FASD) are also predisposed to adverse experiences. However, these adverse experiences may be more common for those with FASD living within the child welfare system.

The National FASD Database is the only one of its kind in the world, comprised of data collected from FASD diagnostic clinics across Canada. The database includes information on diagnoses, client challenges, treatment recommendations, and adverse outcomes, among many other variables. The authors of the current study used data from 665 children and adolescents diagnosed with FASD. The authors first compared all individuals living in child welfare to individuals living with their biological parents and individuals living with adoptive or other family members. The authors then looked at differences among children (<12 years old) and adolescents (12-17 years old) across these different living situations.

Main Findings

All individuals

  • Individuals in child welfare more often reported experiencing physical or sexual abuse compared to children living with their biological parents (30.7% vs 5%).
  • Compared to individuals living with adoptive or other family members, individuals in child welfare had higher rates of general difficulties with the law (11% vs 4.9%) and legal problems as an offender (13.3% vs 5.7%), had experienced higher rates of physical or sexual abuse (30.7% vs 14.3%), and had lower rates of mood disorders (22.5% vs 37.9%) compared to individuals living with adoptive or other family members.
  • The prevalence of suicidal ideation/suicide attempts was high for the total sample (39%) but did not differ by living situation.

Children

  • Children (<12 years old) in child welfare had higher rates of physical or sexual abuse compared to children who lived with their biological parents.
  • Children in child welfare reported lower rates of mood disorders than children who lived with adoptive or other family members.

Adolescents

  • Adolescents (12-17 years old) living in child welfare more often reported physical or sexual abuse compared to children living with their biological parents or adoptive/other family members.
  • Adolescents living in child welfare had a higher rate of legal problems as an offender compared to children living with biological parents and higher rates of legal problems as a victim compared to adolescents living with adoptive/other family members.

(Read more…)

(en anglais) Looking for Artists with FASD!

CanFASD is looking for Canadian artists with fetal alcohol spectrum disorder (FASD) to participate in their annual art competition!

The winner will receive a $500 prize and their art will be featured on the CanFASD holiday cards.

Deadline is November 25, 2020. Be sure to check out their website for full contest details.

You can also browse through the art from their past winners!

(Source article)

Deuxième lecture du projet de loi 172 de l’Ontario sur le TSAF le mardi 3 novembre 2020 à 18h

Une grande nouvelle en provenance de FASD ONE concernant l’éducation et le TSAF, n’hésitez pas à partager et à poursuivre la conversation!

(Veuillez noter que le message de Mary Cunningham a été traduit de l’anglais par nos soins)

29 octobre 2020 Chers membres de la « famille » TSAF de l’Ontario:

Ceci est pour VOUS si vous avez le TSAF, si vous avez un membre de votre famille atteint du TSAF, si vous soutenez une ou plusieurs personnes atteintes du TSAF, si vous connaissez quelqu’un qui souffre du TSAF, si vous faites des recherches sur le TSAF… et / ou si vous êtes intéressé par le TSAF d’une autre manière. Ceci est pour vous.

Nous vous demandons de transmettre ce message à TOUTES LES PERSONNES que vous connaissez qui se soucient du TSAF, de le mettre sur Facebook et de le tweeter partout. Cherchez aussi des occasions de parler aux autres des grands progrès qui ont été accomplis dans le projet de loi 172 de l’Ontario sur le TSAF.

Le FASD ONE Education Action Group (EAG) a eu de bonnes nouvelles hier! La députée Kathleen Wynne (première ministre de l’Ontario 2013-2018) parrainera la deuxième lecture du projet de loi 172 – Loi relative au TSAF mardi soir prochain à 18h. C’est le mardi 3 novembre 2020.

Nous espérons que vous serez nombreux à regarder et écouter la deuxième lecture du projet de loi 172. POUR FAIRE CELA, VEUILLEZ ALLER SUR https://www.ola.org/en/legislative-business/video vers 17 h 55 le mardi 3 novembre 2020.

À quoi s’attendre lors de la deuxième lecture: La députée Wynne s’exprimera en faveur du projet de loi et chaque parti reconnu aura la possibilité de s’exprimer par la suite. Ensuite, la députée Wynne aura peu de temps pour répondre. Le vote sur le projet de loi suivra. À cause du COVID, de nombreux députés ne seront pas là, alors ne soyez pas choqués par cela. Tous les projets de loi de l’Ontario doivent passer par cette procédure.

Renseignements supplémentaires: Veuillez trouver deux autres documents pour vous donner des connaissances générales cohérentes sur le projet de loi 172. Cela permettra à notre communauté ontarienne du TSAF d’être « sur la même longueur d’onde » au sujet de ce projet de loi alors que nous entamons un nouveau voyage. S’il était adopté, l’Ontario serait la première province / territoire canadien à adopter un projet de loi sur le TSAF comme celui-ci.

Documents joints:

  1. Ce que vous devez savoir sur le projet de loi 172 sur le TSAF de l’Ontario (en anglais)
  2. Déclaration de la députée Kathleen Wynne concernant le projet de loi 172 (en anglais)

Après la deuxième lecture: Le FASD ONE EAG évaluera comment la deuxième lecture du projet de loi 172 se déroulera le 3 novembre et nous prévoyons de suggérer les prochaines étapes qui permettront à toute personne intéressée par le TSAF de travailler ensemble et de promouvoir l’adoption du projet de loi 172. L’EAG apprécierait vos commentaires sur ce que vous avez appris lors de la deuxième lecture ainsi que VOS bonnes idées à utiliser dans le cadre de notre collaboration future.
Veuillez transmettre vos commentaires / idées à cunninghammary@rogers.com

Merci de nous aider à diffuser ces connaissances dans le monde entier.
Cela nous donnera à tous quelque chose de nouveau et de positif pour nous aider à traverser cette « période de COVID ».

Mary Cunningham

(en anglais) Indigenous teen overcomes past and raises $5,000 for local food bank with ultra-marathon

COVID-19 may have been the impetus for many people to take up a new pastime, but for one Merritt teenager, the activity he chose seemed unlikely, even impossible. Darius Sam, 19, who had never entered a 10K run, raced a bicycle or swam much at all, decided to run an Ironman Triathlon.

The coronavirus lockdown had cancelled all formal competitions — made up of a five-km swim, 180-km bike ride, followed by a full 42-km marathon. So Sam ran his own, on his own.

“I did a self-made Ironman,” said Sam, whose two friends witnessed the race, considered one of the world’s toughest one-day competitions. “I just wanted to test my mental and physical limits. I’ve always been fit. But there was no training.

“I didn’t run, I didn’t bike, I didn’t swim,” he said. “I had just bought a bike a month before.” He is now ready for another challenge. “I was looking for something else, crazier, harder.” He decided on a 100-mile (170-km) ultra-marathon and to raise money for charity.

Outside the Nicola Valley food bank, he saw a senior in the long lineup on her scooter. “I asked her how she was. She said she was hungry. I knew right there and then (which charity to fund).” He picked June 13 to run from the Nicola Lake rest point to Spences Bridge and back again and expects to complete it in under 24 hours. A GoFundMe page goal of $1,000 has since been upped to $5,000, and by the middle of last week had reached $4,500. He researched 100-mile runs online, for tips on hydrating and eating, what to bring (extra socks) and what to expect (“You could get a pulmonary edema, or collapse, or get a knee inflammation.”)

“It’s not natural. I don’t think humans are supposed to be running 100 miles in under 24 hours,” said Sam. “People think I’m crazy. They think I’m absolutely nuts.”

His friend will be driving behind him. The road doesn’t have any cell service and if they need medical help, they will drive to the nearest hospital.

Sam has received advice from Merritt personal trainer and nutritionist Mark Nendick, who said, “I heard about what he was doing for the food bank and I thought it was awesome.”

He has offered to pace Sam for the last 30 miles because the 70-mile mark “is when people start falling apart.”

“Eighty per cent of running a 100-miler is mental,” he said. “He has been doing a lot of physical training, and I think he’s mentally able to do it.”

“I don’t have any quit,” said Sam. “As long as I can run, nothing will stop me.”

The five-foot-10, 170-lb. teen was born with fetal alcohol syndrome and grew up in a foster home.

(Read more…)

(en anglais) Student defies odds for college career

Samantha has defied the odds stacked against her since birth.

She knows what it means to work hard despite obstacles being thrown at her from every direction.

Samantha’s perseverance was acknowledged last month when she was awarded the Ronald Lees Bursary from the Children’s Aid Society of Nipissing and Parry Sound.

“As an adopted person who has been diagnosed with FASD (fetal alcohol syndrome disorder) I have had to overcome many obstacles related to learning strategies,” she said in her bursary application. “I have to work very hard for my success. I struggle socially and so I have had to come home often to keep a close connection with my family in order to be successful at college.”

Samantha’s mother was an addict. She died from her addiction this spring. In the mist of that tragedy, Samantha was able to successfully pass her first year of studies at Fleming College in Lindsay where she is pursuing a diploma in ecosystems management.

Gisele Hebert, executive director for CAS Nipissing and Parry Sound, said the stories of perseverance are heartwarming.

“Many of these children that we receive applications from are older and come with significant trauma. When you see the successes these young adults have earned, it truly brings a tear to your eye.”

Hebert said the $1,000 bursary is given out annually in honour of Ronald Lees, former executive director at the agency.

“He was extremely passionate about adoption. He made it a priority,” she said Monday. “Ronald was an adoptive parent himself.”

This year, CAS Nipissing and Parry Sound was able to give out three bursaries to young men and women who were adopted through the local agency and are pursuing post-secondary education in a trade, college or university. The other two bursaries were $800 and $500. YES Employment Services provided $500 to help increase the amount being distributed.

Although the province is dealing with COVID-19, CAS Nipissing and Parry Sound is moving forward with its adoption process. In 2019 to 2020, there were nine adoptions, 13 adoptions from 2018 to 2019, 26 adoptions in 2017 to 2018 and 15 adoptions from 2016 to 2017.

(Read more…)

Projet Photo-Voix TSAF

Connaissez-vous un adulte atteint du TSAF en Ontario (Canada) qui aimerait partager sa voix à travers un projet Photo-Voix sur le TSAF ?

Si c’est le cas, veuillez partager l’affiche ci-jointe / les informations ci-dessous et demander leur d’envoyer un courriel (en anglais) à fasd@oursacredbreath.com ou en français (si l’anglais représente un obstacle) à m.gabert@healthnexus.ca avant le 31 octobre.

De plus amples informations seront envoyées aux personnes intéressées / éligibles, mais il s’agit essentiellement d’un projet où vous prenez une photo qui représente un aspect de vous-même et du TSAF. Elle sera accompagnée de vos pensées (mots) sur ce que cette image représente pour vous.

Les images et les significations seront recueillies et partagées (de manière anonyme si vous le souhaitez) pour aider à faire connaître le TSAF.

Ce projet peut exister via une subvention de Nexus santé grâce au gouvernement de l’Ontario, c’est pourquoi seuls les adultes en Ontario sont admissibles. (Les places sont limitées).

Il n’y aura pas de compensation financière, mais vous recevrez une copie encadrée de votre soumission de projet et une copie de la vidéo terminée.

 

(en anglais) 2021 Dr. Sterling Clarren Award Applications Open

CanFASD is accepting applications for the 2021 Dr. Sterling Clarren FASD Research Award!

The Canada FASD Research Network (CanFASD) Dr. Sterling Clarren FASD Research Award has been named in honour of Dr. Sterling Clarren to recognize his pioneering contribution and leadership in the field of Fetal Alcohol Spectrum Disorder (FASD). The award is presented annually to a Canadian graduate student or early career researcher in recognition of a study that has made a substantial contribution to the FASD field.

For this award, preference is given to studies conducted in the CanFASD priority areas of FASD prevention, diagnosis, intervention, child welfare, and justice, in CanFASD member jurisdictions (British Columbia, Alberta, Saskatchewan, Manitoba, New Brunswick, Northwest Territories, Nunavut, and Yukon). However, studies conducted in other areas of FASD research (e.g., epidemiology, biomedical, animal studies) and other Canadian jurisdictions will also be considered. All studies must clearly integrate FASD research, policy, and practice, and demonstrate relevance to the human dimensions of FASD.

Applications may be submitted by graduate students, post-doctoral fellows, or early career investigators (within 3 years of first Faculty appointment). The research must be complete or near completion (i.e., data collection and analysis phases are complete). Studies may be submitted for publication, in press, or published, however, but will only be considered within one year of publication date.

This year’s applications are due by December 4, 2020. The award recipient will be invited to present their research in the Spring of 2021 and will receive a cash prize of $2,000.

Check out CanFASD’s website to find application instructions and read about previous Dr. Sterling Clarren FASD Research Award winners.

(Source article)

(en anglais) National Poll (UK) Shows Support For Access To Key Information For Diagnosis Of FASD

(London) – A new poll shows that 91% of women and 85% of men believe that children should have access to information about harm done to them in utero to help them get diagnosis and support (only 1% of women disagreed or strongly disagreed and 2% of men). 85% of women and 74% of men believe drinking alcohol in pregnancy should be noted as part of routine antenatal care (only 5% of women and 6% of men disagreed or strongly disagreed). These finding show massive public support exists for the intent of the draft Quality Standard on Fetal Alcohol Spectrum Disorder (FASD) being produced by NICE, the National Institute for Health and Care Excellence. FASD is a relatively unknown neurodevelopmental condition which experts say is more prevalent than autism but often undiagnosed.

According to Joanna Buckard of the National Organisation for FASD, which commissioned the poll, “This poll strongly suggests that framing of these discussions is important. While we understand the limits of this sort of poll, these results reflect what we’ve been hearing from members of the public and experts for years. Information about exposure to alcohol in pregnancy is the first step toward diagnosis and is needed for the more than 90% on the FASD spectrum without the distinctive facial features. Every child with a disability has the right to the correct diagnosis. Having the right diagnosis can be the key to understanding and support. This can be life changing.”

Dr Cassie Jackson of the Centre for FASD in Suffolk said, “Lacking this key information when children come for assessment can mean the difference between receiving a diagnosis that will facilitate appropriate support from services moving forward; and continuing undiagnosed, leaving children and young people potentially misunderstood for a lifetime. Accurate documenting of alcohol use during pregnancy is absolutely necessary for timely and accurate diagnosis.”

(Read more…)