Lived experience of fetal alcohol spectrum disorder: A qualitative scoping review
FASD is a lifelong disability that affects individuals, their caregivers, and families on a daily basis. Individuals with FASD are aware of their disability and can be left feeling different and isolated, while caregivers have to negotiate the daily challenge of parenting a child with FASD. Despite these challenges, individuals with FASD have talents and qualities; raising a child with FASD can bring joy to both caregivers and families. Professionals feel unprepared and overwhelmed when supporting someone with FASD because of a lack of knowledge, funding, and support for individuals living with FASD.
Fetal alcohol spectrum disorder diagnostic clinic capacity in Canadian Provinces and territories
“…This study examined the capacity for interdisciplinary team diagnosis of FASD across selected provinces and territories in Canada. Capacity.. has either remained stable or fallen in all jurisdictions studied between 2015 and 2019..This study revealed that approximately 98% of cases of FASD are underdiagnosed or misdiagnosed, which is supported by previous publications…”
An Empirical Examination of Confabulation in Adolescents with Fetal Alcohol Spectrum Disorder (FASD)
Confabulation is when missing memories are unwittingly filled in with distorted or fabricated information. This has been shown to lead to incorrect information in legal cases involving suspects, witnesses or victims of crime. This study is the first to experimentally explore confabulation in adolescents with fetal alcohol spectrum
disorders (FASD).
Access to oral health care for children with fetal alcohol spectrum disorder: a cross-sectional study
The objective of this cross-sectional study is to examine the use of oral health care services by children diagnosed with FASD in Saskatchewan, Canada, and to identify perceived barriers that affect their access to oral health care.
Does paternal alcohol consumption affect the severity of traits of fetal alcohol spectrum disorders?
Paternal alcohol consumption was associated with an independent, negative influence on child height, head circumference, and verbal IQ. Maternal drinking, when combined with heavy male drinking, was associated with more severe FASD outcomes.
Learning with FASD
This factsheet will assist secondary school teaching and support staff to better understand social and emotional development in adolescents with Fetal Alcohol Spectrum Disorder (FASD).
The 9 Keys to Classroom Interventions (and Beyond) – (in french)
A practical guide designed for teachers, educators, support workers, and parents who wish to intervene with kindness, effectiveness, and understanding.
Classroom Accommodations
A compiled list of education accommodations available to students with disabilities
Strategies for Making Your Classroom FASD Friendly
Tip sheet for supporting students with FASD. (4 pages)
Canadian Academy of Health Sciences – Assessment on Fetal Alcohol Spectrum Disorder in Canada
A report funded by the Public Health Agency of Canada answering key questions on uptake of FASD diagnostic guidelines, challenges associated with case identification and data collection, strengthening prevention activities, and identification of tools, resources, and supports for people with FASD and their families.
Prevention and Screening Actions for Fetal Alcohol Spectrum Disorders to be Implemented in Medical Practice – (in french)
The Delphi method was used, which is a systematic and interactive forecasting technique based on a panel of experts. It makes it possible to consult a group of experts on a defined topic in order to reach a consensus (16). Each expert is consulted individually and anonymously using an initial questionnaire.
A Population-Based Study on Women Who Used Alcohol during Pregnancy and Their Neonates in Ontario, Canada
It is crucial to screen childbearing age and pregnant women who use alcohol for mental health problems and other substance use and to facilitate access to treatment services to prevent adverse maternal and neonatal outcomes. Routine screening and data collection on alcohol use in pregnancy are urgently needed on provincial, national and global levels.
