A National Caregiving Strategy for Canada
A National Caregiving Strategy for Canada contains actionable public policy solutions to address the biggest challenges faced by caregivers, care recipients and care providers across Canada.
“YOU DON’T WANT TO DRINK? WHAT ARE YOU, PREGNANT?!” : PORTRAYALS OF ALCOHOL AND SUBSTANCE USE DURING PREGNANCY ON TELEVISION
In the current study, we aimed to explore the portrayal of alcohol (and substance) use (e.g., tobacco, opioids) during pregnancy in North American, English speaking mainstream prime time and streaming television shows (N = 25).
Transitions into adulthood for people with fetal alcohol spectrum disorder: A scoping review of promising practices
Twenty-one peer-reviewed sources were included in this review. Studies largely focused on one of three areas: (1) programs supporting youth with FASD and their families, (2) lived experiences of individuals with FASD during the transition to adulthood, or (3) preventing adverse outcomes. Recommendations from included studies highlighted the importance of programs and supports that demonstrate an understanding of FASD and emphasize relationship-building, the benefits of obtaining an FASD diagnosis, the notable gap in services for individuals who have transitioned to adulthood, and the importance of consistent advocates in the lives of youth with FASD.
Kitchen Table Conversations: Short and shareable conversation starters to support you or your loved ones with a complicated and beautiful brain.
Short and shareable conversation starters to support you or your loved ones with a complicated and beautiful brain.
Collaborative Action on Fetal Alcohol Spectrum Disorder Prevention: Principles for Enacting the Truth and Reconciliation Commission Call to Action #33
The association between fetal alcohol spectrum disorder (FASD), residential schools and subsequent assimilatory policies in Canada is of such significance that it was included in the groundbreaking Truth and Reconciliation Commission of Canada’s Final Report through Call to Action #33, which focuses on collaboratively developing FASD prevention programs in Indigenous communities.
Sex and age effects on gray matter volume trajectories in young children with prenatal alcohol exposure
Using longitudinal T1-weighted MRI, the present study characterized gray matter volume development in young children with PAE compared to unexposed children.
(KBHN) Disability Policy in Canada
The Disability Policy in Canada Provincial and Territorial Report was commissioned by Kids Brain Health Network (KBHN), and developed in collaboration with researchers from the Disability Policy Research Program (DiPo) and McGill University. The purpose of this report is to provide a comprehensive overview of the current state of disability policy across Canadian provinces and territories. This report can serve as a baseline against which future progress in policy changes can be assessed, or at least understood.
How to Explain an FASD Diagnosis to your Child
The following are tips on how to explain the diagnosis of FASD to your child in a way that they can understand, and feel empowered by their disorder.
Caregivers’ experiences and perceptions of suicidality among their children and youth with fetal alcohol spectrum disorder
Individuals with Fetal Alcohol Spectrum Disorder (FASD) experience a range of biopsychosocial vulnerabilities that can increase the possibility of adverse life outcomes, including a heightened risk of suicidality. In this study, we explored the lived experiences of caregivers of children and youth with FASD and suicidality, including their perceptions of their child and youth’s suicidal experiences.
Why suicide prevention support is crucial for people with fetal alcohol spectrum disorder
Fetal alcohol spectrum disorder (FASD) is a lifelong disability that affects the brain and body of people prenatally exposed to alcohol. New research is backing concerns raised by the FASD community about the high rates of suicidality among people with FASD.
Evaluation of Brain Alterations and Behavior in Children With Low Levels of Prenatal Alcohol Exposure
The objective of this paper is to compare structural brain alterations and behavioral changes in children with lower levels of prenatal alcohol exposure (PAE) with those of well-matched controls with no PAE.
Towards Healthy Outcomes for Individuals with FASD
All human beings are motivated by the desire to live with purpose and succeed. It’s not enough to simply ‘get by’ in life; we must feel as though we’re meeting expectations set by ourselves and others. People of all abilities need to feel they have a purpose and can contribute to society. However, the path to these experiences may be unique, especially for individuals with Fetal Alcohol Spectrum Disorder (FASD), where the nature of the disability can vary. Finding this path can be even more difficult due to a lack of understanding.
